Par for the course....

Its just after midnight and we've only been home for a little while...so this will be a short one...

Ethan had a bad night last night. Very uncomfortable! So his pain medication was put back up and the feeds were stopped. He was also given some extra sedatives to help him settle....and finally around 4am he did. He slept for a few hours until he had to be done up. Then took him a little while to settle down

...and the cycle continued, whenever he woke up he was bugged for a few mins to get him cleaned up, x-rayed, etc and then settled again. He had a really good sleep through the afternoon and then woke up early evening and was awake until about 10:00pm....all the while having some moments of calm, but mostly he was fussing and uncomfortable and at times unconsolable. He started passing gas....which is good because he needs to get it out, but bad because it's terribly painful.

Today the docs decided to just give Ethan a rest and basically return to the setting he had on Tuesday. So, all in all, it wasn't a great day, but it wasn't awful. We've gotten used to one step forward and two steps back. And as Carrie (our day nurse) said, it's tough but it's basically par for the course. Not exactly what we want to hear, but there is some comfort in knowing that Ethan's recovery has been somewhat typical and expected.

Thanks to Andrea and Andrea for coming to visit (and yes, I did mean to write Andrea twice)

Goodnight all.