Ok, so we're not the best at posting in any kind of timeline. So, here is a bit of a run down of what we've been through, and are going through.
First, Ethan was diagnosed with an omphalocele in utero. We were told it was a small one. Read about it here.
There was a very high risk that Tammy would have to have a c-section. Thankfully, his birth was natural.
Like I told you all earlier, his first day on earth would include a surgery. The operation was a success, and what was then diagnosed as a burst blood vessel on a cyst, was safely removed.
His time in the NICU though not ideal, was made made somewhat more bearable by the great nurses and doctors.
Over the course of that week, it's discovered that Ethan had another issue. None of the food he was getting was actually getting through. And on his fifth day on earth, had to undergo another surgery. This time, they removed 13cm's of small intestine. The part of the intestin removed was the part that absorbs the fluids. It would be a few weeks before he'd recover. Fortunately, he'd start eating and pooping properly soon enough.
Fast forward to March 7th. Ethan, eating more and more, gaining weight (though slowly), and he decides that it's about time to start puking... A LOT. Not the normal baby puking, but really puking, all the time. And there starts our first time in Children's ER. Fortunately, (kind of) he has a bug and it goes away quickly.
March 21 - Appointment with Dr.Wiseman, he tells us that the omphalocele that he was diagnosed with, then promptly changed, was in fact an omphalocele.
March 22 - Ethan had a seizure that day. I swear it was one of the scariest things I've ever seen. His mouth turned blueish, his eyes rolled into the back of his head, and his body was as stiff as a board. As we know him to be a puker, we had him face down over the ground (in my arms). His head, however, was facing straight up (had he been standing, he'd be looking up in the air).
We call an ambulance, they get to our house in minutes, Ethan seems to have calmed down by then. And off we go to Children's again.
They run a series of tests, all come back clean, and we're sent home.
March 26th, Ethan begins to throw-up again. Yellow mostly (normally white), which isn't good. Then, one gets darker, a green tinge to it. That's it... we have to go back to Children's.
Ethan has been NPO (not eating) since Saturday the 26th (last feed that he kept down was at 1pm). He has been on anti-biotics since then. They attempted to feed him the other day, his stomach blew up again, and had to be stopped. Oh, the feed? 5cc's (5ml).
Last night Ethan was to undergo a minor surgery, putting in a central line. It's basically an IV that is more secure.
We get there at 10pmish. And are told to go to the OR waiting room. So, we did.... and stayed there... There are signs in that room that say "It can take longer than you expect for your child to recover, we will come get you when they are ready." ...
At 6am, I say "I have to go, I have to get home and get ready for work." So, I make my way up to the room again, as I left the car keys in there. Our nurse comes up and asks how we are doing in the PICU. I tell her "We're still in the OR waiting room." You can see her get visibly upset, she calls down to the PICU and tells them that we were left in the OR waiting room. We really don't care, about any of this, we want to see Ethan, as he just had a surgery and he needs his parents. Finally, we see him. He's sleeping, and beautiful.
Basically, that's the story so far. There are things I am missing I'm sure, but this is the tough stuff.
Tammy and Dale, you guys are such strong loving parents. I hope you get some good news on Monday and don't have any more hospital visits until the little guy needs his wisdom teeth out.
ReplyDeleteMuch love to you both,
Cassie