Follow ups

It's been about 2 weeks since my last post...we've just been having too much fun to spend time on the computer :)

Ethan is doing great. He still throws up on occasion (once a day at most, usually coinciding with crying) and his body is still trying to get the digesting thing down, but he'll get there eventually. We had a follow up with the dietitian and she is very pleased with Ethan's progress and said she doesn't need to see him for a few months now. And we also went to see the surgeon on Friday he's also happy with Ethan's progress. He did take a stool sample though because it' still weird (I'll spare you the details)....he just wants to have it tested to see if Ethan is losing a significant amount of nutrients and if he is then he can go on some sort of medication to slow things a little to give his body a better chance to absorb everything it needs....but that being said, he has been gaining weight well (average 30g/day) and he's finally in double digits - officially 10lbs on Friday! Yay!

We also found out on Friday that Ethan's case will be published in a medical journal. I don't know which one yet, but will definitely be requesting a copy, if I can. The doctor said he is a very special and complicated little boy! Every time they start writing it they come across a new discovery....initially they thought he had an omphalocele, then they didn't, then it was confirmed in pathology that he did, then the next surgery was done because nothing was passing from top to bottom, at which point we thought Ethan was in the clear, but he ended up in hospital again....this time they thought the scar tissue had formed a stricture that wasn't letting things pass through, which was partly true, but apparently Ethan was forming another small part of intestines inside the ones he already had....I don't know if that even makes sense the way I said it, but I can draw you  picture if I see you....so they think that the narrowing was part of the problem, but also that the extra piece of bowel was trying to work too and was causing an overproduction of bad things (mucus, bacteria, etc).

That's about it for news....and here are a few picture of the past couple of weeks....

Austin Powers impersonation

All played out

Chubby cheeks...finally!

(and his cute little shirt says "Bald is the new Fro"!)

We hope you are all doing well. Thank-you so much for all of your support, we don't know if we would have made it to this point without you. <3

Stayed tuned.......we'll keep updating periodically! :)